Thalassaemia Awareness, Screening & Prevention Cell

It’s a matter of great joy that we have launched a ‘Co-ordination Cell’ to raise voice regarding Thalassaemia awareness, Screening among general people to find out thalassaemia patients or carrier all over the country and take necessary steps to prevent thalassaemia. This Co-ordination Cell is formed by the joint collaboration with Lab One Foundation of Thalassaemia & Hospital and Rotary International District 3281 Bangladesh. It has started its work by the celebration of inauguration ceremony on 25th September, 2018 at LOFH premises.

This Cell will remain open for 24 hours in a day & 7 days weekly. In January 10, 2018 on behalf of ‘‘Government of the people’s republic of Bangladesh’’ honorable Health Minister Mohammed Nasim has declared in the celebration program of Bangabandhu Sheikh Mujibur Rahman returned day at National Museum, Bangladesh will be Thalassaemia free country within the year of 2028 and regarding this, government will take necessary steps to materialize it properly.

Government has already started work in a full swing. Beside the government, our Co-ordination Cell will take effective roles to make Thalassaemia free Bangladesh.

 

At a glance about Thalassaemia

The Thalassaemias are a heterogeneous group of disorders with a genetically determined reduction in the rate of synthesis of one or more types of normal heamoglobin polypeptide chain. This results in a decrease in the amount of the haemoglobin involving the affected chain. In some forms of thalassaemia, the genetic mutation results in the synthesis of a structurally abnormal haemoglobin which is produced at a reduced rate.

Thalassaemia is a inherited disease. If father or mother is affected in thalassaemia, their children will born with thalassaemia. In Bangladesh, about 10 percent people carry thalassaemia gene & about 4 percent people are affected in thalassaemia. We know that only proper knowledge about thalassaemia can prevent this silent killing disease. We should raise awareness about thalassaemia that we can make a thalassaemia free country. Lets come, we spread out about thalassaemia in every corner of our country.

Bangladesh is a developing country. Most of the people lead their life in hand to mouth & many of them live below the poverty line. In this situation, If any child born with thalassaemia, he is a curse of this family because that family cannot bear any cost for treatment. A thalassaemia patient needs 10,000 to 30,000 tk per month for regular health check up, tests, blood transfusion, medicine & others cost which is quite impossible to manage this huge money for maximum family in our country. As a result, that patients survive their life in various problems till death.

So, let’s raise our voice for creating awareness about thalassaemia.

Contact Information :

Co-ordination Cell : Open for 24/7
Lab One Foundation of Thalassaemia & Hospital
House #08, Road #12, Sector #14, Uttara, Dhaka-1230
Mobile: +88-01922-117676, +88-01922-117672
E-mail: labone.org@gmail.com,
Web: www.loft.labone.org.bd